*** correction *** implanted device has 2 leads. Only 1 lead had only 1 of 2 functions temporarily suspended around 6 weeks after first status epilepticis event. Eleven months later NO ONE has given us information about the event or any educational resources.Experimental subjects are silly to expect patient care.Off the cuff comments about SUDEP with the apologies that oxygen must be prescribed by the GP aren't conducive establishing trust and confidence.
*** correction *** implanted device has 2 leads. Only 1 lead had only 1 of 2 functions temporarily suspended around 6 weeks after first status epilepticis event. Eleven months later NO ONE has given us information about the event or any educational resources. Experimental subjects are silly to expect patient care. Off the cuff comments about SUDEP with the apologies that oxygen must be prescribed by the GP aren't conducive establishing trust and confidence.